Friday, October 11, 2013

What's it like being a T1D? Watch Numbers of the Day

I know there are several good resources out there for folks wondering what its like to experience the daily ups and downs of being a Type 1 Diabetic. Some speak to my experience more than others. This Vimeo video by Seamus Harte entitled "Numbers of the Day" is one that is pretty close. I believe I tweeted (@aaronjaffe) the link a few weeks back, but its well worth posting about here on the RTB Blog.

Though I'm now getting close to the other side of 35, I definitely remember some of these same challenges back in college. I particularly like the scene where he is in front of the vending machine battling a low, desperate for calories of any kind...i feel ya bro :-) To me, the fact that he's also a film student adds some integrity to the video as well. I cant recall why I know this, but I think this was an assignment for one of his classes?

Anyway, despite the very real challenges that he identifies in the video, I think he does a good job of not going too doom and gloom. He presents the challenges in a more subtle factual way...this is my life...this is what i endure...this is what its like...take it or leave it. It's a perspective that reinforces my "t1d is a lifestyle with no off days" mentality. There are ups and downs, good days and bad...but as long as you get more right than wrong and you're honest with yourself on a daily basis, then you are doing just fine.

I made my wife watch it and i think she got something out of it. You should do the same!

Numbers of the Day from Seamus Harte on Vimeo.

Monday, October 7, 2013

JDRF Walk for a Cure 2013 West Tennessee

Over the weekend we participated in this year's JDRF Walk for a Cure at Shelby Farms Park. Greg and I raised money for the JDRF ride, but the walk is such a nice event we felt compelled to participate here too :-) 

My wife's school was kind enough to also held a fundraiser (along with three two other walk participants) and allowed us to donate another $122 to JDRF, in addition to my $2225 raised for the ride a couple weeks earlier. Very proud of that! 

Anyway, the event was great as always, with tons of people and a great vibe. We even met Dr. Ferry, the local head of LeBonheur's pediatric Endo department. He was very helpful and offered a lot of info in Trialnet. Google it if you haven't heard if it...along with my good friend Dr. Bill Russell of Vanderbilt University. Great people and great work being done. 

Let's find a cure! 

Here are some pics:

Nashville JDRF Ride for a Cure 2013 - complete!

Great event! Most money raised, most participants, most elevation change and most fun :-) Quite the accomplishment for an inaugural ride event. Saw some old pals (Victoria Cumbow, Dr. Bill Russell, Jessie Clark, Trey Moore) and I met tons of cool new folks: team Novo Nordisk riders, the head of JDRF research, numerous JDRF ride coaches and teams from all over the country. A big thank you to West TN JDRF, Middle TN JDRF and also a shout out to the Orlando FL chapter for syncing up with me at the end so we could all finish our first Century Ride!!! 100 miles complete! 

Thursday, September 12, 2013

JDRF Ride For a Cure- Nashville 2013

It's crunchtime people! So please consider donating to my 2013 JDRF Ride for a Cure fundraising campaign. I've almost reached my $2000.00 goal and I've got 9 days to go- everything helps! 

The ride takes place in Nashville, TN on Sept 21. My earlier post from Fall 2012 gives some additional details. Have a look at the elevation map- that's a new find :-) 

Thank you for your support! Link:Aaron's JDRF fundraising page

About JDRF:

JDRF is the leading global organization funding type 1 diabetes (T1D) research. JDRF’s goal is to progressively remove the impact of T1D from people’s lives until we achieve a world without T1D. JDRF collaborates with a wide spectrum of partners and is the only organization with the scientific resources, regulatory influence, and a working plan to better treat, prevent, and eventually cure T1D.
As the largest charitable supporter of T1D research, JDRF is currently sponsoring $530 million in scientific research in 17 countries. In 2012 alone, JDRF provided more than $110 million to T1D research. More than 80 percent of JDRF’s expenditures directly support research and research-related education. In 2012 Forbes magazine named JDRF one of its five All-Star charities, citing the organization’s efficiency and effectiveness.

Wednesday, April 10, 2013

Formula for the Cure

Interesting that this (old) story resurfaces on NBC News today. These are approved Pfizer and Novartisk cancer drugs...companies big enough to repackage it, own it and make some money in lieu of the fact that they'd be crippling a multi billion dollar industry. 

Unless there's a catch (which there often is), the simplicity of this treatment/cure is too hard to ignore and/or quash...which leads me to believe that there is a chance that this could be the perfect storm for a cure to actually emerge. 

The formula would be something like this: potential cure+extreme ease of implementation (cant ignore)+involvement of major drug companies (rather than random new kid on block)+money to be made (last piece of the pie!)+survival of the fittest capitalism(i dont care if we cripple the industry, lets make some money on this!)= true chance for t1d cure. Godspeed.

Click link below for the video:

Monday, April 8, 2013

What's New?

Spring has sprung in Memphis- time to shift into the next gear. Since our March 3rd MISSISSIPPI 50 ( 50 trail race, Greg and I have gotten back to just having fun out there. For me, the fun factor is huge, so I have to stay on top of that at all times...otherwise I lose my mojo. Greg recently bought an awesome Felt Z4 road bike (all carbon) and we have been breaking it in as much as possible. Last Saturday was my first mountain bike ride of the year too- felt great to be back on the bike. I've fit in a few shorter tempo runs here and there and I'm looking forward to finding another 50k to take on. Training for the JDRF 100 will start soon enough so I gotta fit it all in now.

I was thinking about some future posts- here's a taste: Race report on the ms50 coming soon...also some details on my August Insulindependence trip to Montana, thoughts on my omnipod & dexcom experience (as an athlete) and my new role as a GLU ambassador ( Stay tuned!

Wednesday, January 23, 2013

I'm doing the ride...

I signed up for the JDRF Ride to Cure (Nashville). I'm excited to finally be a JDRF rider and im excited to take on a century ride. I get to ride "the trace". Sweeeet. More to come...

September 19 - 22, 2013
Nashville, TN is home of country music, the Grand Ole Opry, southern hospitality and some of the best cycling the South has to offer. The JDRF inaugural Nashville, TN Ride follows scenic roads through the countryside and parklands before entering the Natchez Trace Parkway. This ride offers a challenging out and back course with rolling hills, beautiful vistas and limited commercial traffic. The Natchez Trace, designated as one of the top 10 U.S. biking routes, is a historical path that extends roughly 440 miles from Natchez, Mississippi to Nashville, Tennessee, linking the Cumberland, Tennessee and Mississippi rivers. Enjoy cycling with no stop signs or stop lights as access on and off the Trace is via on and off ramps. Instead of utility poles and buildings, the Trace is lined with forests, farmland, creeks and beautiful panorama views, making Nashville, TN a cyclist's dream.

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